Friday, August 31, 2012

A strong girl despite a weak heart

Quick update from my phone as we head out of town for the holiday. Wishing I could say she has a perfect heart but that's not the case. It's pretty hard to sum up a 3 hour appointment in a few sentences but here goes. Charlotte has an AV canal defect and possibly total anomalous pulmonary venous connection. Basically a big hole in the center of her heart and the veins leading back to the heart from the lungs aren't connected to the left atrium like they should be. In an ideal situation, she will have surgery at 4 months to fix the defects. However a number of complications could cause too much stress on her heart prior to Jan or when she is born and she would not survive. There is also a possibility that the complications we learned about will cause her heart to take priority and the surgeons would have to figure out how to perform the surgery before the opening in her back is closed. Clearly an issue since heart surgery requires her to lay on her back. I am trying my best to plan ahead and gain knowledge but take one day at a time. Much easier said than done. Definitely not the outcome I was praying for but I can't let something in the past cause me to stumble. A very long road is ahead. Thanks for all the prayers. He is certainly the reason I am not curled up in the fetal position...at least for now ;)

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