Dr. Aimee, our pediatrician, has us set up with the neurology team and I am waiting on a call back from Dr. Roberts office for an appointment time.
So that's where we are. If anyone reading this knows good stuff about any of these doctors, please let me know! So far I just know they come highly recommended and when I "googled" them they have kind faces :)
On a personal note, I have learned a lot over the last few weeks. Not just about medicine, birth defects, hospitals, doctors etc. But also about people. I know that next time I know someone in a tight spot and I don't know what to say, I will say something. Is it awkward? Yes! But saying something "wrong" is always better than saying nothing at all. At least in my opinion. I have also learned how important it is to step outside of yourself and family and notice what is happening around you. It gives you so much more perspective on your own situation.
I say this not as a lecture to anyone reading but to myself. I have never been in a situation where anonymous cards came in the mail or meals were delivered or all my long time friends were there to lend a helping hand or ear. Sometimes I think "Wow, my situation must really stink!" but mostly I am just thankful. So even now in the middle of this chaos I am trying to notice others around me struggling so maybe I can send a card or lend a hand.
The quote "Be kinder than necessary, for everyone you meet is fighting some kind of battle" has a whole new meaning. I would rather give everyone the benefit of the doubt. Even the crazy Dad at carpool that parks in the line and gets out ;)
“Be kind and compassionate to one another, forgiving each other, just as in Christ God forgave.” (Ephesians 4:32)
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